Grrr ok getting a bit frustrated with myself now. Apparently I can't even keep it together for a full week to post daily. Well again I'm two days after my latest post. This time however, I have a bit better news to share. I start a new job tomorrow. Not exactly what I was looking for, but it is work, and the owner understands and accepts my scheduling needs. This works out as beneficial to both of us since he needed someone to cover an opening, and I needed something to provide at least a meager income while we feel things out in the transition of coming home and getting adjusted to our new needs.
My boy is doing well. Aside from a bit of nasty attitude, and seeming to get a little worse since we've been home. However we were told this might happen and that the swelling should recede again soon. In the meanwhile he was put back on the steroids to relieve the swelling. Next week we go for Physical Theropy and Speech Evals with the local Dr.'s whome we have already asked to contact his physicians at St. Jude so that St. Jude is the facility in control of his treatment.
Hopefully I won't be too tired or strained tomorrow and can post to say how the day went. For the time being I would like to thank everyone for their prayers and thoughts for my son and my family. Just remember when you go to the gas station or the grocery store and someone is asking you if you would like to donate a dollar to St. Jude and put your name on a balloon or sneaker or something like that. The hospital really does get that money, and you never know. I pray it never happens, but you just never know if one day you may need to call on them as we have.
Monday, December 28, 2009
I'm slacking!!
Posted by Shadow at 10:02 PM
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2 comments:
Hi Shadow:
I received a Google alert tonight and I see you put a link to Addi and Cassi's website -- my little twins who have a fatal cholesteorl disease that destroys the brain. I decided to check out your website and read your posts to find out more about you and I read that your son has brain cancer. I am just devastated.
I am so sorry Shadow and so sad and I just want to scream out. I know what you are going through -- a different rare disease of course but it's the same in so many ways. It's our innocent little kids that don't deserve this.
I know who stressed you are looking for a job and trying to figure out how you can do the treatments, etc. Please don't be afraid to reach out to your community, friends, family -- you will need them. If they offer to help, take them up on it. Accepting help is very hard to do but people will amaze you.
I would like to send you a Curecap for your son -- we have people making them for us and for anyone suffering from a brain disease.
You will feel better if you take action -- like you are doing now by blogging about your feelings and getting the word out and connecting with people.
Send me your address OK -- you can also call me if you want to talk. 775-849-1924.
Never give up hope and my love and prayers are with you and your family.
Much love,
Chris Hempel
Mom to Addi and Cassi
www.addiandcassi.com
Also, look into Curcumin -- it's on my website. I have heard it can be effective with certain kinds of brain tumors.
I give my girls very high doses of it each day -- call Blake Ebersole at Verdure Sciences for more information on Curcumin and brain tumor research.
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